Co-creating knowledge mobilization activities to address pregnancy-related near-miss events and death

Who We Are

Summary

The Hub is a community that brings together various stakeholders: persons with lived experience of pregnancy, their family and support persons, healthcare providers, policy makers, and researchers. The Hub is part of the Pan-Canadian Women's Health Coalition - 2023​ of the National Women's Health Research Initiative. Our work strives to improve the health and wellness of women and gender diverse people in Canada by co-creating knowledge mobilization activities to address pregnancy-related near miss events and deaths.

Pan-Canadian Women's Health Coalition - 2023

The HUB is a part of the Pan-Canadian Women's Health Coalition, which is a collaborative effort aimed at advancing gender equity in health research and policy throughout Canada by bringing together stakeholders from academia, healthcare, government, and community sectors.

This coalition underscores the importance of evidence-based approaches and inclusive research methodologies to drive systematic change and improve healthcare outcomes for women.

Visit CIHR to learn more about the Coalition.

Our Structure

The Hub is comprised of various stakeholders: persons with lived experience of pregnancy, their family
and support persons, healthcare providers, policy makers, and researchers.

Figure 1. Organigram of the Hub community

Our Hub’s community includes

Advisory Sharing Circle

With members of the tripartite leadership (Rohan D’Souza, the Canadian Perinatal Programs Coalition, and Isabelle Malhamé), and members of the Hub

Working Groups

With members of the Hub and external collaborators

Hub Community

All Hub members

What We Do

What is knowledge mobilization?

Knowledge mobilization encompasses a wide range of activities related to the production and use of evidence, including1:

  • Knowledge synthesis​
  • Knowledge dissemination​
  • Knowledge transfer​
  • Knowledge exchange
  • And relies on co-creation and co-production by researchers and knowledge users

What is co-creation?

  • An open, active, and creative process in which all relevant stakeholders are engaged in an innovation process2
  • It is achieved through respectful interactions and dialog where everyone’s voice is considered3
  • When engaging in co-creation, researchers accept a shift in power dynamics from being fully in charge decision-makers towards equal partners with non-academic stakeholders4

How will use knowledge mobilization?

To stop perpetuating systems of oppression and marginalization faced by women and gender-diverse people in healthcare, knowledge mobilization activities to reduce pregnancy-related serious complications will be co-created with communities that carry the greatest burden of harm.

What is Severe Maternal Morbidity?

Severe maternal morbidity is a set of unexpected, outcomes related to pregnancy, labor, childbirth, and the postpartum period resulting in severe illness, prolonged hospitalization, and/or long-term disability.5

Figure 2. Visual representation of the continuum of pregnancy-related morbidity and mortality

Health inequities exist with regards to Severe Maternal Morbidity and a disproportionate burden of pregnancy-related morbidity and mortality is carried by racialized, immigrant, Indigenous, sex/gender minoritized populations, and persons with other instances of marginalization.6-10

There is an urgent need to reduce the knowledge-to-action gap in this area of women and gender-diverse people’s health through the development of knowledge mobilization activities.

This is exactly what the Hub plans to do!

Figure 3. Knowledge mobilization activities planned to be carried out by the Hub

Knowledge Mobilization
Results

That's a wrap! Our teams have completed Knowledge Mobilization Activity # 1 .

Final outputs will be made available to you shortly.

Current Events

You can follow progress and get updates from the Hub with our Newsletter.

This content is in development. Check back soon!

This content is in development. Check back soon!

This content is in development. Check back soon!

Upcoming Events

Would you like to be identified as a person with lived experience of pregnancy, their family or support person?

Join us to create change in the quality of pregnancy care experienced in Canada!

References

  1. SSHRC. Guidelines for Effective Knowledge Mobilization. Updated 2019-06-17. 2023-Jan. https://www.sshrc-crsh.gc.ca/funding-financement/policies-politiques/knowledge_mobilisation-mobilisation_des_connaissances-eng.aspx
  2. van Dijk-de Vries A, Stevens A, van der Weijden T, Beurskens AJHM. How to support a co-creative research approach in order to foster impact. The development of a Co-creation Impact Compass for healthcare researchers. PLoS One. 2020 Oct 12;15(10):e0240543. doi:
    10.1371/journal.pone.0240543. PMID: 33045033; PMCID: PMC7549764.;
  3. Norris JM, White DE, Nowell L, Mrklas K, Stelfox HT. How do stakeholders from multiple hierarchical levels of a large provincial health system define engagement? A qualitative study. Implement Sci 2017;12: 98 10.1186/s13012-017-0625-5;
  4. Leask C, Sandlund M, Skelton D, Altenburg T, Cardon G, Chinapaw M, et al. Framework, principles and recommendations for utilising participatory methodologies in the co-creation and evaluation of public health interventions. Res Involv Engagem 2019;5: 2 10.1186/s40900-018-0136-9
  5. Kilpatrick SK, Ecker JL. Severe maternal morbidity: screening and review. Am J Obstet Gynecol. Sep 2016;215(3):B17-22. doi:10.1016/j.ajog.2016.07.050
  6. Urquia ML, Wanigaratne S, Ray JG, Joseph KS. Severe maternal morbidity associated with maternal birthplace: A population-based register study. Journal of Obstetrics and Gynaecology Canada. 2017/11/01/ 2017;39(11):978-987. doi:https://doi.org/10.1016/j.jogc.2017.05.01
  7. In Plain Sight - Addressing Indigenous-specific Racism and Discrimination in B.C. Health Care. January 30, 2023. Accessed January 30, 2023. https://engage.gov.bc.ca/app/uploads/sites/613/2020/11/In-Plain-Sight-Summary-Report.pdf
  8. Leonard SA, Berrahou I, Zhang A, Monseur B, Main EK, Obedin-Maliver J. Sexual and/or gender minority disparities in obstetrical and birth outcomes. Am J Obstet Gynecol. Jun 2022;226(6):846.e1-846.e14. doi:10.1016/j.ajog.2022.02.041
  9. Boutin A, Cherian A, Liauw J, et al. Database Autopsy: An Efficient and Effective Confidential Enquiry into Maternal Deaths in Canada. Journal of obstetrics and gynaecology Canada : JOGC = Journal d'obstetrique et gynecologie du Canada : JOGC. 2021;43(1):58-66.e4.
    doi:https://dx.doi.org/10.1016/j.jogc.2020.06.026
  10. Brown HK, Ray JG, Chen S, et al. Association of Preexisting Disability With Severe Maternal Morbidity or Mortality in Ontario, Canada. JAMA Netw Open. Feb 1 2021;4(2):e2034993. doi:10.1001/jamanetworkopen.2020.34993

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